Who Do You Want Making Decisions for Your Child? From our Partners at the Idaho Council on Developmental Disabilities
Partners in Policymaking participants receive information, training, resources and skill building so they may have the best possible life experiences for themselves and their children. The goal of Partners in Policymaking is to develop productive partnerships between people who need services and those who make policy and law.
As a Partners Graduate, You will be able to:
- Describe the history of services and perceptions of people with developmental disabilities.
- Describe the contributions of the parent, self-advocate, and independent living movements.
- Outline strategies to achieve inclusion and quality education.
- Understand person-centered planning and supports necessary to achieve community inclusion.
- Understand how to create positive supports for people with disabilities.
- Identify strategies and develop skills for beginning and sustaining grass roots level organizing.
- Outline strategies used to support people with disabilities in their own homes throughout their lives.
- Understand the concepts of supported, competitive, and self-employment.
- Describe how a bill becomes a law at the state and federal levels.
- Draft and deliver testimony for legislative hearings.
- Demonstrate how to meet a public official and express views and concerns.
- Organize local community events that are accessible for all participants.
Medicare Access and CHIP Reauthorization Act funds support Family-to-Family Health Information Centers in all 50 states and District of Columbia
The Health Resources and Services Administration (HRSA) announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children and youth with special health care needs. Funding for the centers was extended through fiscal year 2017 by the Medicare Access and CHIP Reauthorization Act of 2015.
“Family-to-Family Health Information Centers served nearly one million families of children with special health care needs last year alone,” said HRSA Acting Administrator Jim Macrae. “Ninety-six percent of the families the centers served reported they were key in helping families find and navigate additional community resources and care for their children.”
The state-wide centers are staffed by trained family leaders who themselves have children with special health care needs, such as cerebral palsy, cystic fibrosis, autism, developmental delay, and other health chronic conditions, and are linked to health professionals providing care. Centers provide education, training, peer support, and expertise in navigating federal, state and local public and private health care systems for families of children and youth with special health care needs.
“In addition to providing needed support for families, last year approximately 400,000 physicians, nurses, and other health professionals tapped centers’ resources, making information regarding the needs of these children more widely available than ever before,” said HRSA Associate Administrator for the Maternal and Child Health Bureau, Michael Lu, MD, MPH.
Since the program’s inception in 2005, Family-to-Family Health Information Centers have served millions of families and health professionals nationwide. This latest round of funding supports 51 centers in all 50 states and the District of Columbia, with approximately $95,700 awarded to each center.
What is Idaho Parents Unlimited?
Founded in 1985, Idaho Parents Unlimited, Inc. (IPUL) is a statewide organization which houses the Idaho Parent Training and Information Center, the Family to Family Health Information Center, Idaho Family Voices, the Creative Access Art Center and VSA Idaho, the State Organization on Arts and Disability.
The Parent Training and Information Center ensures that parents of children with disabilities receive training and information on their rights, responsibilities, and protections under the Individuals with Disabilities Education Act (IDEA) in order to develop the skills necessary to cooperatively and effectively participate in planning and decision making relating to early intervention, educational, and transitional services.
As the State Family Voices Affiliate and the Family to Family Health Information Center, IPUL assists families in making informed choices about health care; provides training, information and resources to families of children with special health care needs.
VSA Idaho empowers and engage people with disabilities in the creative process through opportunities which are fully inclusive, educational and participatory. VSA Idaho creates opportunities by providing professional training and workshops, developing state initiated projects and implementing successful national programs. VSA Idaho in cooperation with funding through various sources such as the State Department of Education and the Idaho Commission on the Arts provide opportunities for artists to work alongside teachers providing quality arts education to students with disabilities throughout the state.